Rider_In_Ttown
Posts: 246
Sep 9, 2010 12:13pm
http://abcnews.go.com/2020/video/70-2020-special-friday-109c-11576083
This Friday night September 10th at 10PM EDT 20/20 on ABC will be doing a special about my daughter Kaylee and what it is like to live with Progeria. We are pretty excited and are hoping this raises even more awareness to our cause.
This Friday night September 10th at 10PM EDT 20/20 on ABC will be doing a special about my daughter Kaylee and what it is like to live with Progeria. We are pretty excited and are hoping this raises even more awareness to our cause.
Fab4Runner
Posts: 6,196
Sep 9, 2010 12:17pm
I'll be setting the DVR!
OneBuckeye
Posts: 5,888
Sep 9, 2010 12:37pm
Will set the DVR.
Little Danny
Posts: 4,288
Sep 9, 2010 12:52pm
I'll be watching Rider. Do you still wear the St. Mary's letter jacket? 
power i
Posts: 1,296
Sep 9, 2010 1:06pm
I'll be sure to watch.
Rider_In_Ttown
Posts: 246
Sep 9, 2010 1:27pm
I am wearing the jacket in the 20/20 interview.
karen lotz
Posts: 22,284
Sep 9, 2010 1:36pm
DVR will be set. Thanks for the heads up!
power i
Posts: 1,296
Sep 9, 2010 1:49pm
So how was meeting Barbara? She has to be a very interesting person.
mcburg93
Posts: 3,167
Sep 9, 2010 2:57pm
wow this is awesome on getting the info out there for the disease. I am happy for your family and all with this disease getting knowledge out there so people understand it is huge.
I
I Wear Pants
Posts: 16,223
Sep 9, 2010 3:11pm
Hopefully your family had a good time with it and it's always good to get info out for people to learn.
Did you solicit Barbara for a sponsership for the golf outing?
Did you solicit Barbara for a sponsership for the golf outing?
Rider_In_Ttown
Posts: 246
Sep 10, 2010 9:59am
I didn't know about the golf outing when we did the interview. It was filmed before she went on medical leave. Barbara was great. She made the interview very easy to do.
Yesterday on "The view" the girls talked about the special. If you are interested in seeing it, in the middle of the page clcik where it says "Barbara Walters Reports on Progeria"
http://abcnews.go.com/2020
Yesterday on "The view" the girls talked about the special. If you are interested in seeing it, in the middle of the page clcik where it says "Barbara Walters Reports on Progeria"
http://abcnews.go.com/2020
ernest_t_bass
Posts: 24,984
Sep 10, 2010 10:11am
You'd think, with all the bank Justin's making on this website, he'd run a commercial promoting the golf outing during the special!
Edit: Also, I will be setting the DVR.
Edit: Also, I will be setting the DVR.
Ironman92
Posts: 49,363
Sep 10, 2010 10:35am
Pretty cool! Hope this helps the awareness and info to find a cure.
V
vball10set
Posts: 24,795
Sep 10, 2010 11:56am
looking forward to seeing it, rider--hope it rises awareness to a whole new level....God bless !!!
I
I Wear Pants
Posts: 16,223
Sep 11, 2010 12:33am
There is an article on progeria on the front page of CNN.
http://www.cnn.com/2010/HEALTH/09/10/progeria.children.aging/index.html?hpt=C2
http://www.cnn.com/2010/HEALTH/09/10/progeria.children.aging/index.html?hpt=C2
Rider_In_Ttown
Posts: 246
Sep 11, 2010 1:00am
It has been a great week. The buzz about the Barbara Walters Special has caused a lot of media outlets to try to get stories. I am excited that is has brought about this much attention. There will be alot more coming in the coming months. I am told Dateline and a few others are working on stories. Our friends in KY are filming a documentary right now for Discovery Health. The more stories the better for our cause.
Mooney44Cards
Posts: 2,754
Sep 11, 2010 1:00am
I Wear Pants;479400 wrote:There is an article on progeria on the front page of CNN.
http://www.cnn.com/2010/HEALTH/09/10/progeria.children.aging/index.html?hpt=C2
I actually clicked on this thread to post about this. Saw it earlier headlined as something like "Benjamin Button disease" or something like that and I knew exactly what it was before I clicked on it due to Rider_In_Ttown's past posts on the situation.
THE4RINGZ
Posts: 16,816
Sep 11, 2010 1:07am
I missed the show tonight due to HS football but hope it helps build awareness for this condition.
Hope all is well with you and your family rider.
Hope all is well with you and your family rider.
V
vball10set
Posts: 24,795
Sep 11, 2010 8:37am
wow--what a show!!! your daughter is an angel, and your family is incredible (and I loved your son's OSU shirt!!!). I'm proud to say I "know" you, and I hope my prayers and contribution goes a long way towards helping you meet your goals...God bless 
ernest_t_bass
Posts: 24,984
Sep 11, 2010 9:02am
Dammit. I forgot to DVR. Will it be on again?
Rider_In_Ttown
Posts: 246
Sep 11, 2010 9:17am
It might re-air again next year. They will run new episodes of 20/20 probably until spring.
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Nate
Posts: 3,949
Sep 11, 2010 9:50am
Can't wait to see it. It's waiting for me in my DVR.